Penny Brohn - Cancer Care

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Previous research

More information
Service Evaluation of 'Living Well with the Impact of Cancer' Courses. Report published October 2013. 

In 2010 a long-term, in-depth service evaluation of Penny Brohn Cancer Care's 'Living Well with the Impact of Cancer' courses was set up by Dr Helen Seers at Penny Brohn Cancer Care and Dr Marie Polley at the University of Westminster. The findings of the evaluation were presented by Dr Polley at the Society For Integrative Oncology international conference in Vancouver in October 2013. 

Full details of the evaluation and a copy of the final report can be found here
National Cancer Survivorship Initiative (NCSI) Living Well Scoping Report March 2010

In 2009/10 Dr Helen Seers was the Macmillan Research Officer based at Penny Brohn Cancer Care. She took part a scoping exercise in the Active and Advanced Disease workstream for the National Cancer Survivorship Initiative (NCSI).  

The task was to scope out the "living well" services for people with cancer available nationally as well as provide an evidence review of their effectiveness.  Key recommendations of this report are:

Living Well Services should:

provide a whole person approach to careallow decisions about care to embrace a person-centred approachprovide self-management tools

Living Well Services should also be available via: 

equal access to services (financially and geographically)information accessed by a trained key-worker (using the NHS patient information pathways)
Living Well Services should also:

be financially efficient/ make best use of resources; allow potential cost savings for NHS
Copies of the report are available via the National Cancer Survivorship Initiative or click here to download.

MYCaW (Measure Yourself Concerns and Wellbeing)
These publications look at the experiences of people on residential courses at our national centre.

The MYCaW ("Measure Yourself Concerns and Wellbeing" questionnaire, devised by Dr. Charlotte Paterson) is a client tailored outcome measure of changes in levels of concerns and wellbeing. 

Penny Brohn Cancer Care has used this questionnaire for over a decade, and also helped to develop it.  A recent academic paper (Seers et al. 2009) published results from our “Approach” courses, and in partnership with another cancer support centre. We found that peoples’ concerns and wellbeing were improved at a clinically significant level, showing that the Approach course is beneficial for people with cancer. We also found that people most benefitted from spending time with other course members, receiving complementary therapies and support and understanding from services staff.

In a separate publication (Polley et al. 2007) we generated guidelines and categories for analyzing the open ended questions about peoples’ experiences on the MYCaW questionnaire. You can download a copy of these guidelines here.

Knowledge Transfer Partnership Project (KTP)
In partnership with the University of Plymouth looking at the quality of complementary therapy healthcare information.

A Knowledge Transfer Partnership is a joint project between an organisation and an academic institution. This partnership was formed by Penny Brohn Cancer Care and the University of Plymouth’s Faculty of Health and Social Care.

Matthew Breckons was the KTP associate between 2007 and 2009. He focused on developing the evidence based information materials on complementary therapies and cancer. This process involved examining methods of assessing the quality of web-based complementary therapy information, establishing stakeholder expectations and developing processes for the production of high-quality information. For more information click here.

Publications gained via the KTP:

Breckons M., Jones R., Morris J., Richardson J. “What do evaluation instruments tell us about the quality of complementary medicine information on the internet?”. J Med Internet Res, 2008, vol. 10(1).

Find out more about the information we provide here.